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Born 1969 England. Arrived in Australia 1972. Single. No children. Partially disabled from severe osteoporosis, pituitary gland tumor (benign), myopathy and Ehlers-Danlos Syndrome (hypermobile in every joint). 18 yrs caring for my quadriplegic cerebral palsy friend, Rob. Ceramic artist www.sam-davies.blogspot.com

Thursday, February 21, 2013


PAINFUL CONTRACTURES

 
 

 
 
Here my legs are contracting toward my chest. I can't push them down no matter how hard I try. If I take muscle relaxant like baclofen I suffer other problems such as drooling and my penis shrinking so much that my urodomes can not be applied unless taped on and leads to urine leakage. Also the baclofen makes my throat muscles more lax and increases the risk of choking on food and drink even when sat up.

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